The other neat change lately has been his eating. While he still isn't swallowing or eating anything orally for consumption (besides purees on some days), he is doing a great job at chewing. Better yet, the biggest change that we have noticed is that he actually seems like he is enjoying trying to eat. This is a BIG step. For children like Ethan, eating is a chore. It doesn't come easy and it takes a lot of concentration to move their tongue correctly, etc. So, to see him eager to try to eat is a great sign! I did get clearance from his eating therapist to start talking about and encourageing swallowing. I was shocked. There are times we think he has swallowed a tiny piece of food, but normally he spits it back out. The other great change is that he doesn't panic at all anymore and even tries to stuff his mouth full of food. He is actively chewing his food and moving it appropriately in his mouth. We were able to see an actual tongue groove as well. (He never had one before.) These big changes have come about in the past couple of weeks. I am VERY excited! It will still be some time before he would consume enough food to have his g-button removed (probably another year or so) but I am happy with the progress I am seeing.
Carter had pizza for the first time yesterday. He LOVED it!
Ethan did a great job with his pizza. You would have thought he was swallowing it! He didn't gag or vomit. In fact, since we increased his Prevacid dosage a few weeks ago, he hasn't vomited in TWO WHOLE WEEKS. That means that for the first time since he got his trach, I haven't had to clean up vomit on a daily basis. Trust me, that is AWESOME!
One of the reasons I always have my camera on me is to capture times like these...milestones that we have worked at for a long time. You will notice that his left leg lags briefly behind his right. This isn't surprising because one leg is stronger than the other. But, the one he did right before this (I was too busy cheering) he had equal weight distribution.